What a great year. No other way to say it than...no major health issues....and lots of great accomplishments. Kaleb became a all state triathlete in shot put, the 100meter and 400 meter wheelchair competitions. He was able to go to Washington, DC in May to honor his uncle, a fallen police office from Alexandria, Virginia which was a trip of a lifetime. And then in July, went for a 10 day trip to Costa Rica with his friend to visit his uncle, Nick. Doesn't get much better than this!
Kaleb currently has his driving permit (no special adaptations needed). He has taken the classes and is doing the driving portion now with the instructor. Before we know it, he will be a full-fledged driver.
So proud of this young man. Despite the obstacles that OsteoPETrosis can bring, he is an overcomer. I think of him every time I hear the new song by Mandisa (http://www.klove.com/music/artists/mandisa/songs/overcomer-lyrics.aspx).
We are excited to be planning our attendance at the first ever Patient Symposium in Philadelphia for those who suffer from all forms of OsteoPETrosis. There is a doctor session the next day which I am so excited about to know that over 10 doctors will be gathering to discuss this horrible disease. Cannot wait to get to meet people that I have 'known' for years on the internet...and finally see them in person.
Hugs to all those who suffer from OsteoPETrosis or know those that do Prayers that one day we will have answers. Until then...carry on....and reach out to https://www.facebook.com/groups/osteopetrosis/
~Lori
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