We're all preparing for the upcoming holidays and the hustle and bustle is in full swing. I ask that this Christmastime, you take time to remember those less fortunate or enduring the fight of their life.
Once upon a time, back in 1995, I was still a naive 23 year old believing that I would have my baby boy in a few months, and life would be grand. We were very anxious and eager to celebrate his entrance into this world. Little did I know what the next 10 years would be like, the procedures, the doctors, the tears, and the struggle.
Due to our experiences, we have had the 'awesome', yet heart wrenching opportunity to meeting many, many families who have suffered from "osteoPETrosis" - both the recessive and dominant forms. We have lost many little heros to this disease and to this day, we're watching others fight this same fight. I ask that you lift up each little soul that suffers from all forms of Osteopetrosis. Below are links to the current troopers and their situations. Please leave a post on their guestbooks and let their families know they are NOT alone. Even though it is a rare disease, it is one that greatly affects many lives.
Blessings to each of you as you celebrate Jesus' birth.
www.caringbridge.com/visit/babygavinw - Team Gavin - underwent BMT on 12/20
http://www.caringbridge.org/visit/tigerlilly - TigerLilly - underwent 2nd BMT on 8/31/07
I also ask that you keep Nate's family in your prayers. Nate lost his battle 9/22/06. He is truly an angel, as you will see on his page. His family welcomed in Hans on 8/30/07. When I opened my Christmas boxes this season to bring out my ornaments, I saw the angel that Elly created in memory of Nate and the tears flowed. Rest in peace, sweet Nate. http://www.caringbridge.org/fl/nate/
There are so many others that are fighting now or are serving as angels. A prayer from each of us may make all the difference in the world.
Many blessings to each of you during this Christmas season.
--Lori
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