Merry Christmas to everyone and many blessings for 2008.
I wanted to share some sites that I've found recently regarding Osteopetrosis patients. First, I found of a woman in California who overcame her struggles with OP and started Laura Burch Artworks - http://laurelburch.com/index.html. She created beautiful products that were very vivid in color and design. Unfortunately, Laura passed away in September 07 but her memory will definitely live on through the products she has created. The About Us page indicates she left her tumultuous home at the age of 14 with a paper bag of clothes and Osteopetrosis. I cannot imagine :(
Also, I found a brief article on a 13 year old boy that is now blind due to OP and he has 2 pieces of artwork in a show in October 2007. The article does not show his pieces of work and I quickly searched for more info but didn't find yet. Take a look at http://www.ocregister.com/ocregister/healthfitness/article_1889520.php for more info.
I just wanted to share these stories b/c they have been very uplifting to me. I don't know any details about either of these 2 people but I think it's great they were successful in overcoming the many obstacles OP brings.
Blessings to each of you.
Lori
Tuesday, December 25, 2007
Positive Osteopetrosis stories
Labels:
ADO,
ADOII,
ARO,
artist,
CKBB,
CLCN7,
osteopetrosis,
success stories,
TRAP
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